In which we have a real Endometriosis treatment
Sunday, December 15th, 2024 02:15 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
threemeninaboatFriday morning: Pain level is at 7. I'm on the internet and phone shopping for an endometriosis surgeon and trying to figure out when to fit that in the schedule.
Friday 3:00 shalpacafarm emailed an article that a real endometriosis treatment had be found, in mice, with an already FDA approved migraine medication, Nurtec. Nurtec has almost no side effects and it REALLY works on migraines. Not only is endometriosis pain controlled but IT SHRINKS THE LESIONS.
https://www.livescience.com/he
I said, "But I'm already on 2 CGRP inhibitors...." I shoot Emgality monthly for the past 6 years and Nurtec is a backup.
6 years ago is when I thought I became pre-menopausal because the endometriosis symptoms were so much better. Ohhhhhh.
and 3 months ago the endometriosis symptoms stared up again was the same time ee said, "Do you want to adjust your meds? You look like you need me to adjust your meds" I declined more Emgality but stocked more Nurtec in my handbag and house.
Providers are sometimes horrible patients. It takes me half an hour to figure out that I should just take the Nurtec and see what happens. By 5:00 I am pain free. Zero pain.
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rebeccmeister dug up the whole paper. You can have it here: https://drive.google.com/file/d/16Pf56Zs3nrI6vKlZAUGB-ABiY4Iog0tj/view?usp=sharing
I asked ee for comment:
"good article.
seems to me they should just give it to people off label and see if it helps.
or maybe they did and now they are doing the animal experiments as a precursor to human studies.
but since nurtec is already fda approved, it can be prescribed today off label (or just lie and say the person has migraine. i mean, prove they don’t? right.)"
-----------------
Saturday:
Zero pain. Zero brain fog. Zero bloating. No meds taken.
Sunday: oh Lord here comes The Period. Aleve and gabapentin. But it's period pain, it's not endometriosis pain.
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DOSING INSTRUCTIONS!
https://labeling.pfizer.com/ShowLabeling.aspx?id=19036
Nurtec preventative is used AS NEEDED and can be prescribed as such, up to one every other day.
--------------
GO TEAM! I am leaving this post public so you can share with your pained ones. And inform you OBGYNs.
-----
The little mice. I've been thinking constantly of the little endometriosis mice who kneaded their little endometriosis bellies in pain.
Friday 3:00 shalpacafarm emailed an article that a real endometriosis treatment had be found, in mice, with an already FDA approved migraine medication, Nurtec. Nurtec has almost no side effects and it REALLY works on migraines. Not only is endometriosis pain controlled but IT SHRINKS THE LESIONS.
I said, "But I'm already on 2 CGRP inhibitors...." I shoot Emgality monthly for the past 6 years and Nurtec is a backup.
6 years ago is when I thought I became pre-menopausal because the endometriosis symptoms were so much better. Ohhhhhh.
and 3 months ago the endometriosis symptoms stared up again was the same time ee said, "Do you want to adjust your meds? You look like you need me to adjust your meds" I declined more Emgality but stocked more Nurtec in my handbag and house.
Providers are sometimes horrible patients. It takes me half an hour to figure out that I should just take the Nurtec and see what happens. By 5:00 I am pain free. Zero pain.
-------------------------------
rebeccmeister dug up the whole paper. You can have it here: https://drive.google.com/file/d/16Pf56Zs3nrI6vKlZAUGB-ABiY4Iog0tj/view?usp=sharing
I asked ee for comment:
"good article.
seems to me they should just give it to people off label and see if it helps.
or maybe they did and now they are doing the animal experiments as a precursor to human studies.
but since nurtec is already fda approved, it can be prescribed today off label (or just lie and say the person has migraine. i mean, prove they don’t? right.)"
-----------------
Saturday:
Zero pain. Zero brain fog. Zero bloating. No meds taken.
Sunday: oh Lord here comes The Period. Aleve and gabapentin. But it's period pain, it's not endometriosis pain.
--------------
DOSING INSTRUCTIONS!
https://labeling.pfizer.com/ShowLabeling.aspx?id=19036
Nurtec preventative is used AS NEEDED and can be prescribed as such, up to one every other day.
--------------
GO TEAM! I am leaving this post public so you can share with your pained ones. And inform you OBGYNs.
-----
The little mice. I've been thinking constantly of the little endometriosis mice who kneaded their little endometriosis bellies in pain.
no subject
Date: 2024-12-15 10:46 pm (UTC)no subject
Date: 2024-12-16 02:15 am (UTC)no subject
Date: 2024-12-16 05:10 am (UTC)no subject
Date: 2024-12-16 06:48 pm (UTC)no subject
Date: 2024-12-17 09:36 am (UTC)no subject
Date: 2024-12-17 09:57 pm (UTC)no subject
Date: 2024-12-19 08:34 pm (UTC)I've been on the road/etc, so I just saw your request and carried it out. WHAT A RELIEF!!
GIP
Date: 2024-12-24 07:01 pm (UTC)Awesome news! Thanks for letting us know here (from![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png)
sonia)
Re: GIP
Date: 2024-12-31 05:14 am (UTC)Re: GIP
Date: 2024-12-31 05:57 am (UTC)Re: GIP
Date: 2024-12-31 04:24 pm (UTC)Woo hoo!
I'm sad that when I was younger, endo was shrugged off as "all in the head," and thrilled that I've lived to see possible, non-surgical treatments.