Terror Camp; Body Horror

[threemeninaboat]

This weekend I am on the Zoom conference about tall ship polar exploration, Terror Camp. Terror Camp is by and for young homos and to quote the author of Madness at the End of the World, "I thought my audience was old beardy guys who like the Civil War, yet there's 400 of you here, my largest audience ever, who are...not that... Why do you like me?"

I did not pipe in with, "I have the landlocked blues and I need to know that being on a ship is miserable."

-----------

When I had endometriosis surgery at 22 they gave me 1 year before I'd need surgery again. 2 if I took my meds. I got 21 years.

21 years.

The endometriosis is burrowing into my lower intestine.
I thought, Hm 21 years. Surely we have had some medical break throughs in treatment? Studies? Developments?
No.
Jack shit.

I looked at my collection of what sort of helped in the past:
Diet? Nope.
NSAIDs: Nope.
Gabapentin: Nope
Booze: Bingo


I had 3 drinks at the Gaybors Buc-ee's themed Christmas Party last night. I took 2nd in the costume contest. #1 had a texas flag bikini and stripped, she deserved it. I had a Buc-ee's onesie. We got LEGOs in the White Elephant. I ate lots of garbage. I slept well, not completely pain free, but better than I had in weeks.

I'm normally a 3 drinks a month person ish. So there's now booze with dinner. Tonight is Schilling Cider House Mango 9.1% We'll see how long it holds.
Next step is opiates and finding a surgeon.

Comments

[chasing_silver]

Yeah, it grinds my gears hardcore that there has been really nothing to help endo at all, in years and years of knowing about it. We get nothing, because uterus.

[twoeleven]

I have the landlocked blues and I need to know that being on a ship is miserable.

I have a few books on tall ships.¹ Even being the captain sucked, and the crew were little more than slaves. Pretty much any time during the few thousand years between when ships had to put in for the night because they hadn't figure out how to sail out of sight of land, and the development of diesel engines, being aboard ship was awful. But you knew that.

1: I recommend Last of the Cape Horners, assuming you haven't read it already.

Surely we have had some medical break throughs in treatment? Studies? Developments?
No.

Where did you check?

[rebeccmeister]

Sympathies for the recurrence of the atrocious pain; glad to know that alcohol can help at least somewhat.

I hate how medical research and progress are biased by profit and sexism.

[malterre]

So sorry you are in pain and that Doctors and that some things seem stuck in time because they don't inconvenience white men.

[favoritebean]

Mine is scarring my colon, but my doctor just shrugged and told me to continue bcp. My gyn retired unexpectedly, and I still don’t have answers.

Can you share what you know?

Also, I do a cocktail about five days a week, because I`m in a lot of pain otherwise. Manhattans are good.

[mellowtigger]

I'm sorry, for all of it. (I still wear my rose-tinted glasses for an AI-heavy future, where research is rationally decided based on how great an improvement it can make in human lives, not how much profit is in it or how it supports the existing power structure.) I hope you find some relief soon.

[andrewducker]

I'm so sorry. I hope that at some point it gets the attention it deserves!

[ivy]

Come visit me to get your ship fix (even if it's temporary)!

UGH, to endo bullshit. Best of luck finding a good surgeon.

[fbhjr]

I hope they can get your another 21 or more.

[sistawendy]

Next step is opiates and finding a surgeon.

Oy!