threemeninaboat (![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png)
threemeninaboat) wrote2024-12-08 01:09 pm
threemeninaboat) wrote2024-12-08 01:09 pm
Terror Camp; Body Horror
This weekend I am on the Zoom conference about tall ship polar exploration, Terror Camp. Terror Camp is by and for young homos and to quote the author of Madness at the End of the World, "I thought my audience was old beardy guys who like the Civil War, yet there's 400 of you here, my largest audience ever, who are...not that... Why do you like me?"
I did not pipe in with, "I have the landlocked blues and I need to know that being on a ship is miserable."
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When I had endometriosis surgery at 22 they gave me 1 year before I'd need surgery again. 2 if I took my meds. I got 21 years.
21 years.
The endometriosis is burrowing into my lower intestine.
I thought, Hm 21 years. Surely we have had some medical break throughs in treatment? Studies? Developments?
No.
Jack shit.
I looked at my collection of what sort of helped in the past:
Diet? Nope.
NSAIDs: Nope.
Gabapentin: Nope
Booze: Bingo
I had 3 drinks at the Gaybors Buc-ee's themed Christmas Party last night. I took 2nd in the costume contest. #1 had a texas flag bikini and stripped, she deserved it. I had a Buc-ee's onesie. We got LEGOs in the White Elephant. I ate lots of garbage. I slept well, not completely pain free, but better than I had in weeks.
I'm normally a 3 drinks a month person ish. So there's now booze with dinner. Tonight is Schilling Cider House Mango 9.1% We'll see how long it holds.
Next step is opiates and finding a surgeon.
I did not pipe in with, "I have the landlocked blues and I need to know that being on a ship is miserable."
-----------
When I had endometriosis surgery at 22 they gave me 1 year before I'd need surgery again. 2 if I took my meds. I got 21 years.
21 years.
The endometriosis is burrowing into my lower intestine.
I thought, Hm 21 years. Surely we have had some medical break throughs in treatment? Studies? Developments?
No.
Jack shit.
I looked at my collection of what sort of helped in the past:
Diet? Nope.
NSAIDs: Nope.
Gabapentin: Nope
Booze: Bingo
I had 3 drinks at the Gaybors Buc-ee's themed Christmas Party last night. I took 2nd in the costume contest. #1 had a texas flag bikini and stripped, she deserved it. I had a Buc-ee's onesie. We got LEGOs in the White Elephant. I ate lots of garbage. I slept well, not completely pain free, but better than I had in weeks.
I'm normally a 3 drinks a month person ish. So there's now booze with dinner. Tonight is Schilling Cider House Mango 9.1% We'll see how long it holds.
Next step is opiates and finding a surgeon.
no subject
no subject
One potential treatment, Proellex, crapped out in trials, but it may be back under a new name with vaginal administration. I didn't search further.
Resveratrol seems to stop the progression of endometriosis in animal models. I expect that those studies have progressed since, but I didn't check. If nothing else, drinking lots of red wine for pain couldn't hurt. :)
no subject
Not actually an upgrade from 2 naproxen and shot of whiskey, and $9.5k per year more expensive.
Esmya is only used short term because it causes liver failure. Again, still less effective and expensive and even more damaging than booze and NSAIDS.
That's not progress.
no subject
Whether it's "progress" over an OTC pain-relief combination that occasionally kills people is another question, but I'm waiting for a professional opinion on the drugs' benefits vs their side effect profiles, so I'm not gonna say anything about it.
Those are just two on-the-market drugs from one paper, not all the papers I found. There's over 8,700 papers on endometriosis treatment in the last ten years, of which 1,800 are review articles of one sort or another. It seems people are very actively trying to study and treat your disease.
For some reason, I've become very sensitive to people who just make up facts. So the difference between 8,700 papers and two drugs, however flawed, and jack shit, no studies, and no developments gets on my nerves. Your misrepresentation of all that effort has set off another round of misguided misandry. That's just pissing me off.
So, could you try something like the truth: the drugs have too many drawbacks for you to take them, but it's not for want of trying? Thanks!
no subject
You are being disrespectful.
no subject
no subject
Heh, that's probably backwards: I thought it was respectful, and I'd rewritten the objection repeatedly to make it so. Doesn't matter, I suppose. I wrote it, it didn't succeed at my intent, so it's my bad.